Heart Monitor

AFCDorset

AFCDorset

Roofer
After several months of moaning and whinging, I had a ambulatory ECG recorder fitted Friday afternoon. It was fitted in the ECG/cardio outpatients, not a soul in there, just me and a nurse/technician fitting the unit. Looks like no one has heart disease anymore.

Normally worn for 24 hours but as it is the weekend we decided to continue till Sunday lunchtime so that it would record the events of Saturday evening, Sunday morning. So last night out for a meal and some drinks, still have to take it fairly easy but all good. Little bit of chat with some very nice girls on the next table might show something on the heart rate, hopefully that I am not dead yet.

Wearing it to the gym this morning, light cardio for about 40 mins plus some stretching/physio for my shoulder and back.

Then unplug and drop off at the hospital, be interesting to see what, if anything, they make of that!
 
AFCDorset said:
After several months of moaning and whinging, I had a ambulatory ECG recorder fitted Friday afternoon. It was fitted in the ECG/cardio outpatients, not a soul in there, just me and a nurse/technician fitting the unit. Looks like no one has heart disease anymore.

Normally worn for 24 hours but as it is the weekend we decided to continue till Sunday lunchtime so that it would record the events of Saturday evening, Sunday morning. So last night out for a meal and some drinks, still have to take it fairly easy but all good. Little bit of chat with some very nice girls on the next table might show something on the heart rate, hopefully that I am not dead yet.

Wearing it to the gym this morning, light cardio for about 40 mins plus some stretching/physio for my shoulder and back.

Then unplug and drop off at the hospital, be interesting to see what, if anything, they make of that!
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Hope this starts the full recovery buddy
 
Running Fox said:
Hope this starts the full recovery buddy
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Thanks for the thought.

The problem that I have, is that, post a couple of procedures at the end of last year, I have a metabolism that requires 'managing'.

My resting heartbeat often sits in the 45-50 bpm range, it is my view that this causes a very low metabolic rate and an erratic blood pressure. This leads to tiredness and a lack of energy which impacts my 'quality of life' in a big way.

Can I get anyone in the health service to look at this, to discuss it, to look into alternatives to my current medication, can I fuck.

I am getting very close to telling them that I am stopping the Ace Inhibitors and the Beta blockers and if that does not work, I will see you in A&E. I am not about to pass out or in imminent danger of a stroke or hear attack, so as far as they are concerned I am a 'success' and doing fine, bollocks.
 
AFCDorset said:
Thanks for the thought.

The problem that I have, is that, post a couple of procedures at the end of last year, I have a metabolism that requires 'managing'.

My resting heartbeat often sits in the 45-50 bpm range, it is my view that this causes a very low metabolic rate and an erratic blood pressure. This leads to tiredness and a lack of energy which impacts my 'quality of life' in a big way.

Can I get anyone in the health service to look at this, to discuss it, to look into alternatives to my current medication, can I fuck.

I am getting very close to telling them that I am stopping the Ace Inhibitors and the Beta blockers and if that does not work, I will see you in A&E. I am not about to pass out or in imminent danger of a stroke or hear attack, so as far as they are concerned I am a 'success' and doing fine, bollocks.
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Love to give you some advise, but you know your body best. just do your research and do your best to keep out of hospital, at our age they wont want to let you out alive.
 
Given that the medical establishment is useless, I am happy to get advise where I can. Right now my cardiologist and my GP have me somewhere between FOAD and DNR.

I do not appear to be in immenent danger, my condition is 'controlled' and the treatment pretty much pro forma. If I am happy to sit on the sofa and watch TV I am fine, but doing more than that takes a real effort of will, the strength is just not there.

Quality of life is severely impacted but they are not interested. Not one bit.
 
Sorry to hear about your problems, what you describe sounds very much like the after effects of chemotherapy. That said I can't help being flippant so have you tried Lucozade, Red Bull and single malt cocktails?
 
What? said:
Sorry to hear about your problems, what you describe sounds very much like the after effects of chemotherapy. That said I can't help being flippant so have you tried Lucozade, Red Bull and single malt cocktails?
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Morning all.

Had a bit of chemo but that was back in 2017. Just over a year ago, just after the first lockdown I developed Atrial Fibrillation, sue to a minor (up till then) heart defect. The cause is known but the poor recovery has not been properly investigated, I have not been able to get a face to face with either my GP or my cardio consultant this year.

Sadly caffeine and other 'stimulants' are contra-indicated, I have thought about it though, still am in fact.
 
AFCDorset said:
Morning all.

Had a bit of chemo but that was back in 2017. Just over a year ago, just after the first lockdown I developed Atrial Fibrillation, sue to a minor (up till then) heart defect. The cause is known but the poor recovery has not been properly investigated, I have not been able to get a face to face with either my GP or my cardio consultant this year.

Sadly caffeine and other 'stimulants' are contra-indicated, I have thought about it though, still am in fact.
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the heart seems to be a difficult thing to get answers from anyone about, not sure why as you can find out with a bit of effort the facts about most other organs etc. I've being trying to find out for years the answer to an abnormality l seem to have, it doesn't effect my health at all, yet anyway, but l want to find out incase it could later in life. Its regarding a resting heart rate basically the same as yours 45/50 but if l say start off on a run it will go up to 160 to 180, which is way too high, after about half a mile then settle down to 135 ish. I know this doesn't help you but what I'm trying to say is there seems no one at all who will or can give you answers.

The heart problem, l think its called CRVA that Muamba collapsed from is a genetic one which runs through my family and at least 2 have died from it, was unknown when they died, so I'm at a loss why so little is known about the heart really, by the way it skipped by me but not my sisters. Hope all get sorted soon AFC.
 
Hi Bnet. Thanks for the feedback.

My problem is simple, I have a defective valve in one of the lower chambers of my heart. Until last year, this manifested itself as mild, episodes of arrhythmia, trivial really. Only really noticeable at very high, 150bpm heart rate.

Last year, just after the first lockdown I had a temporary episode of atrial fibrillation, which was not treated. A similar but more sustained issue occurred a few weeks later, which was stabilised by a pro forma drug regime and a place on the waiting list for either a cardio ablation or cardio version procedure.

The waiting list was in the region of 10 months so I payed to have an ablation performed privately. Within 48 hours I was feeling great, really good, all issues gone, energy levels back to normal, fantastic. It lasted a week.

Then a crash, more AF, so they had to do a follow up cardio version, worked to a degree, nothing like the week described above, but not too bad. That is where I have been for 8 months, because of the week following the ablation, I know that I can be better but no one seems inclined to discuss why I am not.

I suspect some more rather expensive private treatment is on the cards. I can not live like this.
 
AFCDorset said:
Hi Bnet. Thanks for the feedback.

My problem is simple, I have a defective valve in one of the lower chambers of my heart. Until last year, this manifested itself as mild, episodes of arrhythmia, trivial really. Only really noticeable at very high, 150bpm heart rate.

Last year, just after the first lockdown I had a temporary episode of atrial fibrillation, which was not treated. A similar but more sustained issue occurred a few weeks later, which was stabilised by a pro forma drug regime and a place on the waiting list for either a cardio ablation or cardio version procedure.

The waiting list was in the region of 10 months so I payed to have an ablation performed privately. Within 48 hours I was feeling great, really good, all issues gone, energy levels back to normal, fantastic. It lasted a week.

Then a crash, more AF, so they had to do a follow up cardio version, worked to a degree, nothing like the week described above, but not too bad. That is where I have been for 8 months, because of the week following the ablation, I know that I can be better but no one seems inclined to discuss why I am not.

I suspect some more rather expensive private treatment is on the cards. I can not live like this.
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unfortunately it seems that's what you've got to do, the wonderful NHS won't do it for you.

I know nothing really about your problem but in different things there are tests that you can buy and use yourself. With prostate cancer the only real markers they look at are the PSA. I was told to get a glucose level test and a veto level test (don't quote me on these as I've got them on a message for when l want to do them and l may have quoted the wrong tests) at Harley street. I've found that you can actually do them yourself. I also have just brought a few D-Dimer test kits so that you can check if anyone as susceptibility to blood clots from the toxic jab in case any family need it. I was just thinking that by narrowing the field of possibilities it could save money with private fees, then again maybe not !
 
I do actually have a possible solution but I am unable to use it. Mrs AFC is a recently retired high end nurse practitioner, who could monitor my symptoms on a daily basis and adjust my drugs and oversee other factors.

Her registration has been terminated and so she can not prescribe, even privately, and has no easy access to test facilities so this is not, at this time a practical solution. I am thinking that I will see if one of the private cardio guys would be prepared to work with her, use her as a nurse to manage my symptoms and provide the access to the drugs and testing needed.

Not exactly in line with NHS/PHE guidelines though, depends hoe 'flexible' he is prepared to be.
 
I always think its best to take your own course and find a way to get alternatives if you need too. I know that Harley street doctors will and can do plenty if you pay them enough. A friend of a friend is an ex International sports team doctor who was struck off and l got him to do something for my achilles tendon op years ago, so its out there !
Good shout marrying a nurse, l married a mental nurse actually 🤪 truthfully !
 
bnet said:
I always think its best to take your own course and find a way to get alternatives if you need too. I know that Harley street doctors will and can do plenty if you pay them enough. A friend of a friend is an ex International sports team doctor who was struck off and l got him to do something for my achilles tendon op years ago, so its out there !
Good shout marrying a nurse, l married a mental nurse actually 🤪 truthfully !
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All nurses are mental, well the good ones anyway.

Back when I first met Mrs AFC she was working in Neo-natal intensive care. That was stressful, caring for tiny little babies, sometimes for weeks and some of them still die, devastating.

We bonded in a fair number of post shift drinking sessions, she is a happy drunk so not actually a bad thing.

More tests this week, hopefully, see what the results are and whether they are actually going to do anything.

If not it will be time to get the wallet out, again.
 
AFCDorset said:
All nurses are mental, well the good ones anyway.

Back when I first met Mrs AFC she was working in Neo-natal intensive care. That was stressful, caring for tiny little babies, sometimes for weeks and some of them still die, devastating.

We bonded in a fair number of post shift drinking sessions, she is a happy drunk so not actually a bad thing.

More tests this week, hopefully, see what the results are and whether they are actually going to do anything.

If not it will be time to get the wallet out, again.
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Put you on my healing list , so you will be fine.:cool:
 
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